Well, we certainly kicked the year off with a bang! We had 22 members join online and face to face to hear from the amazing Peter Mac physiotherapist Megan Howard. Many head and neck cancer patients suffer from lymphedema or fibrosis at some stage following their treatment. Megan’s presentation really aligned with our experiences and generated a lot of great discussion. There are many options available to help reduce the swelling associated with lymphedema including massage, compression, exercise and laser treatment, however, Megan stressed it is always important to see a physiotherapist trained in head and neck lymphedema for an initial assessment.
Patients and carers can find a registered practitioner on Australian Lymphology Association website. Peter Mac runs Q&A session at the Wellbeing Centre event Let’s talk Lymphoedema.
Following Megan’s discussion, the group shared their own experiences with lymphedema and fibrosis. Like many challenges once treatment has ended, it can be difficult to find the right services outside of the hospital environment. It is apparent different things work for different people so the message seems to be keep trying, don’t give up and you will find someone who can help – whether that’s a physio, OT or myotherapist.
It was great to be joined by three new members today. Everyone’s story is unique but it is great to see the support we give each other particularly on the common aspects we all experience.
Our next meetings will be held on the 1st March. You can register here.
Comments